Orphan Disease -Carpa

C.A.R.P.A. is a condition that isolates me from the rest of the world.

As I continuously encounter and navigate the stressful landscape of C.A.R.P.A. symptoms impacting my body, I try to identify its triggers.

This effort not only helps me learn from my ailments but also enables me to share my experiences here, with the hope that healthcare professionals can attain a clearer understanding and foster a greater empathy for my condition.

I walk this lonely path, only guided by life-threatening symptoms, each urging me to understand this rare disease better, in the hope of improving my quality of life.

Imagine a life governed by a condition so incredibly rare that most medical professionals have never heard its name, let alone studied its complex symptoms or found any medicine or treatments for it.

This is my daily reality: living with a Complement activation-related pseudoallergy (C.A.R.P.A.), a condition I have been battling for over ten years.

As I journey in a world where my disease remains a life-threatening enigma, I am forced to live in isolation to protect my health.

Living with a condition that causes multiple stressful symptoms, some of which I face daily, breeds a deep sense of anxiety and uncertainty, which affects my quality of life.

A pseudoallergy, also known as non-allergic hypersensitivity.