
For over twelve years, I have suffered from C.A.R.P.A.
Its symptoms significantly impact my overall well-being and reduce my quality of life.
Symptoms:
Cutaneous Reactions:
Carpa is an orphan disease with very limited research and no financial backing from big pharma, so there is currently no cure available.
CARPA is unpredictable and can become life-threatening.
Carpa's severe reactions impact both internal and external organs; daily ongoing precautions are necessary to prevent triggers. To gain a comprehensive understanding of this condition, personal experiences alone are insufficient; I rely on support from the medical community to conduct diagnostic tests and explore various therapies and treatments.
Dealing with this health nightmare is overwhelming and mentally draining; my resolve and strength are tested every day, and at times I feel like I might lose my mind, but I remain hopeful.
Understanding Complement Activation-Related Pseudoallergies (CARPA): A Different Kind of Allergic-Like Reaction

Kiraluna